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Channel: Jess – The Patient Celiac
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Book Review: Understanding Celiac Disease

I came across Naheed Ali, MD’s book, Understanding Celiac Disease: An Introduction for Patients and Caregivers, in late 2014. I promptly downloaded a copy onto my Ipad, but I have been so busy that I...

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Which Children Should Be Tested For Celiac Disease?

This is a question that seems to come up again and again. I have personally struggled with figuring this out over the last few years as well, so I have read as much as I can about the topic of...

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Springtime Celiac Musings

It seems like every 3 to 4 months that I hit a rough patch in which it is challenging to find time to dedicate to writing and posting on this page. Sometimes it’s because of work demands, often it’s...

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Celiac Disease Research Awareness

I’ve come across many recent headlines stating that scientists are working toward finding a “cure” for celiac disease, including this recent article.  In actuality, the bulk of the current celiac...

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I am going to continue to take my probiotic

I did not intend to write a post this week, but after reading numerous articles, blog posts, and comments regarding a recent study from the Celiac Disease Center at Columbia University showing that...

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Moving Time

My kids had their last day of school in WI yesterday and we are in the midst of getting ready to move to Boston next week. I have had limited time to dedicate to this page as I have prepared for my...

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Pregnancy risk factors for the development of celiac disease

I had never heard of Doximity, a social networking website for physicians, until a few months ago when I received an email that one of my old medical school classmates had added me as a “colleague” on...

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Celiac Knowledge is Power

When I started this page back in 2012, about two years after my celiac diagnosis, I followed several other celiac webpages/blogs and was an active participant in the online forums. Being able to...

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FAQs

I love reading and responding to your comments, emails, and Facebook messages. Lately it seems that many of the same questions have popped up again and again. Below are the answers to some questions...

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Chapter 13

I recently downloaded the book Gluten Free: The Healthy Lifestyle Guide to Gluten Free Diets, by Emily Hoskins, onto my tablet. It was only $2.99 on Amazon and my reader who recommended it insisted...

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Interleukin-15 and Celiac Disease

IL-15 is an important cytokine (immune system protein) involved in celiac disease. In those of us with celiac, ingestion of gluten triggers the release of IL-15 by cells in the lining of our small...

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CDGEMM Study: An effort to understand why celiac disease develops (and what...

The Celiac Disease Genomic, Environmental, Microbiome, and Metabolomic (CDGEMM) Study, recently launched by the Center for Celiac Research at Mass General Hospital for Children, is a long-term,...

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Celiac Disease: More Common Yet “Atypical” than Previously Thought

I recently wrote this paper for an online pediatric journal and thought it might be of interest to some of you. Please feel free to repost and share (as long as you credit me). Thank you! -Jess “Celiac...

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Spring 2016 Celiac Research Round-Up

I figured that there’s no better way to celebrate the sixth anniversary of my celiac disease diagnosis (March 2010, I have no clue what my actual date of diagnosis was) than by scouting out the medical...

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May 2016—My 7th Celiac Awareness Month

I was diagnosed with celiac disease in 2010, so this May will be my 7th celiac awareness month. In May 2010 I was totally overwhelmed with my celiac diagnosis and still trying to get the hang of the...

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Celiac Disease and Headaches

I’ve been intending to write about the association between celiac disease and headaches over the last month, but every time I’ve sat down in front of my computer to start to write this post, I’ve given...

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Revisiting the Past

I’ve worked really hard over the last few years to try not to revisit my past and live in the present moment. I’ve also been recently working on staying off of my phone, the internet, and social media...

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You can run from celiac disease but you can’t hide…

I’ve been off the radar the past few months because we’ve been transitioning AGAIN. We moved from Boston back to my hometown of Cleveland in August, and since that time I’ve been focused on settling...

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Pediatric Celiac Disease Updates

I came across on article on Medscape, a reputable site for medical information, a few days ago that scared me a bit. The title is “Gluten-Free Diet Does Not Repair Intestinal Damage in Some Children...

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The day I forgot to be my own celiac advocate

My family and I moved back to Cleveland recently and I had my first appointment with my new primary care physician a few days ago. Since it was my first time seeing her we reviewed my past medical...

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